ALS Monitor

ALS Monitor is a home observation diary for people living with amyotrophic lateral sclerosis (ALS) and their treating physicians. The patient can log day-to-day notes; the physician can review trends between visits.

ACCESS WITH A PHYSICIAN INVITE CODE
This app is not for open self-registration. An invite code from the treating physician is required. Without the code, account creation is not available.

WHAT YOU CAN LOG (SUPPORTIVE / FOR DISCUSSION WITH YOUR PHYSICIAN)

ALSFRS-R functional scale
All 12 items with history and charts so you and your physician can review change over time.

Estimated disease staging (King's / ALS-MiToS)
Informational estimates derived from the completed scale for discussion with your physician — not a clinical diagnosis.

Breathing notes
mMRC dyspnea diary, orthopnea questionnaire, and vital capacity notes you enter yourself.

Neuromuscular self-checks
Optional notes on muscle strength, six-minute walk, and an on-device speech score from a voice recording. Audio is processed on the device; only a numeric score may be sent to the server.

Nutrition diary
Food logging with macros, calories, and micronutrients. Optional camera helpers (barcode / package text) for convenience.

Daily activity (optional)
Steps, distance, active calories, and heart rate via Health Connect on Android — for lifestyle context, not diagnosis.

Communication assistant
Speaks prepared phrases (about 130 phrases in 19 categories).

Knowledge assistant
Answers general ALS questions from an on-device knowledge base. Informational only; works offline.

Messaging with your physician
In-app chat with the treating physician. Logged diary data can be shared with them.

Export
A Word report you can print or share with another specialist.

PRIVACY
Data is intended for you and your treating physician. Audio and photos stay on the device. No ads and no sale of data to third parties. You can request account and data deletion in the app and via the privacy policy.

IMPORTANT — RECOMMENDATION / INFORMATIONAL ONLY
ALS Monitor does not diagnose, treat, cure, or prevent any disease. It does not replace an in-person medical consultation, emergency care, or your physician's clinical judgment. Scales, estimates, charts, and knowledge answers are supportive tools for self-observation and physician discussion only.

Privacy policy: https://als-monitor.com/privacy