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Screenshots

  • The Duchenne Registry App screenshot 1
  • The Duchenne Registry App screenshot 2
  • The Duchenne Registry App screenshot 3
  • The Duchenne Registry App screenshot 4

About The Duchenne Registry App

This app is intended for use by participants in the Duchenne Registry and requires an invitation and activation code from the study site to register. The Duchenne Registry. This study has been reviewed and approved by the appropriate regulatory body, e.g. Institutional Review Board (IRB) or Independent Ethics Committee (IEC). Key App Features: - Patient Onboarding – complete study app registration and education - Activities – complete scheduled or on-demand study tasks and assessments - Dashboard – review overall progress in the study and current activities - Resources – view study information in the Learn section of the app - Profile – manage account details and app settings - Notifications – receive in-app reminders About THREAD: THREAD’s® purpose is to leverage its clinical research platform to enable studies for everyone, everywhere. The company’s uniquely combined clinical research technology and consulting services help life science organizations to design, operate, and scale next-generation research studies and electronic clinical outcome assessments (eCOA) programs for participants, sites, and study teams. Through its comprehensive platform and scientific expertise, THREAD empowers studies to be accessible, efficient, and centered on the patient.

App privacy

The developer, Hello Thread, reported these privacy practices to Apple.

Data Not Linked to You

The following data, which may be collected but is not linked to your identity, may be used for the following purposes:

  • Usage Data: Product Interaction
  • Diagnostics: Crash Data
  • Contact Info: Email Address
  • User Content: Photos or Videos

Used for: Analytics, App Functionality

Alternatives to The Duchenne Registry App

Looking for apps like The Duchenne Registry App? Here are 6 similar apps on the App Store. The highest rated is Nemours Children’s MyChart (4.9/5), and all 6 are free to download.

The Duchenne Registry App vs. alternatives
App Rating Price Last updated Compare
The Duchenne Registry App – Free June 15, 2026
Parent Project MD 4.8 / 5 (4) Free Oct 2, 2025 Compare
MyAnovo – Free Oct 6, 2026 Compare
PANTHERx Rare 4.1 / 5 (14) Free Sep 3, 2026 Compare
MyPermobil 2.6 / 5 (74) Free Aug 20, 2026 Compare
Nemours Children’s MyChart 4.9 / 5 (8,203) Free Aug 27, 2026 Compare
Accredo 4.8 / 5 (54,988) Free Oct 22, 2026 Compare

Compare The Duchenne Registry App with the top alternatives: ratings, updates, ASO score and keyword gaps →