The Duchenne Registry App
Hello Thread Medical iPhoneiPadiPod touch
The Duchenne Registry App is a free Medical app for iPhone and iPad by Hello Thread. Requires iOS 15.5. Updated June 15, 2026.
- Price
- Free
- on the App Store
- Size
- 70 MB
- Age 17+
- Updated
- Jun 15
- 2026 · v1.0.89
Screenshots
About The Duchenne Registry App
This app is intended for use by participants in the Duchenne Registry and requires an invitation and activation code from the study site to register. The Duchenne Registry. This study has been reviewed and approved by the appropriate regulatory body, e.g. Institutional Review Board (IRB) or Independent Ethics Committee (IEC). Key App Features: - Patient Onboarding – complete study app registration and education - Activities – complete scheduled or on-demand study tasks and assessments - Dashboard – review overall progress in the study and current activities - Resources – view study information in the Learn section of the app - Profile – manage account details and app settings - Notifications – receive in-app reminders About THREAD: THREAD’s® purpose is to leverage its clinical research platform to enable studies for everyone, everywhere. The company’s uniquely combined clinical research technology and consulting services help life science organizations to design, operate, and scale next-generation research studies and electronic clinical outcome assessments (eCOA) programs for participants, sites, and study teams. Through its comprehensive platform and scientific expertise, THREAD empowers studies to be accessible, efficient, and centered on the patient.
App privacy
The developer, Hello Thread, reported these privacy practices to Apple.
Data Not Linked to You
The following data, which may be collected but is not linked to your identity, may be used for the following purposes:
- Usage Data: Product Interaction
- Diagnostics: Crash Data
- Contact Info: Email Address
- User Content: Photos or Videos
Used for: Analytics, App Functionality
Alternatives to The Duchenne Registry App
Looking for apps like The Duchenne Registry App? Here are 6 similar apps on the App Store. The highest rated is Nemours Children’s MyChart (4.9/5), and all 6 are free to download.
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Parent Project MD
4.8
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MyAnovo
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PANTHERx Rare
4.1
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MyPermobil
2.6
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Nemours Children’s MyChart
4.9
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Accredo
4.8
| App | Rating | Price | Last updated | Compare |
|---|---|---|---|---|
| The Duchenne Registry App | – | Free | June 15, 2026 | |
| Parent Project MD | 4.8 / 5 (4) | Free | Oct 2, 2025 | Compare |
| MyAnovo | – | Free | Oct 6, 2026 | Compare |
| PANTHERx Rare | 4.1 / 5 (14) | Free | Sep 3, 2026 | Compare |
| MyPermobil | 2.6 / 5 (74) | Free | Aug 20, 2026 | Compare |
| Nemours Children’s MyChart | 4.9 / 5 (8,203) | Free | Aug 27, 2026 | Compare |
| Accredo | 4.8 / 5 (54,988) | Free | Oct 22, 2026 | Compare |