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Screenshots

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About myHDstory

The Huntington Study Group presents the first companion application to tell your story about how you live with HD and what are your struggles and how you solve them. You will be able to access approved research studies and consent or not to participate.

What’s new

Version 5.1 · Updated May 4, 2026

Page improvements. Users can now enroll in multiple studies.

App privacy

The developer, Huntington Study Group, Ltd, reported these privacy practices to Apple.

Data Linked to You

The following data, which may be collected and linked to your identity, may be used for the following purposes:

  • User Content: Photos or Videos
  • Identifiers: Device ID

Used for: App Functionality

Data Not Linked to You

The following data, which may be collected but is not linked to your identity, may be used for the following purposes:

  • Location: Coarse Location
  • Contact Info: Email Address, Name, Phone Number
  • Identifiers: User ID
  • Usage Data: Product Interaction
  • Sensitive Info: Sensitive Info

Used for: App Functionality

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