About MyLupusJourney
MyLupusJourney is the official app for the Lupus Registry, developed in collaboration with FORWARD—The National Databank for Rheumatic Diseases and Alira Health. Designed with people with lupus in mind, this app makes it easier to contribute to lupus research while staying informed and engaged in your health journey.
Key Features:
- Simple & User-Friendly Questionnaires – Share your experiences to support lupus research.
- Educational Resource Center – Access trusted resources on lupus management and care, with new resources updated often.
- Reminders & Notifications – Stay on track with friendly alerts for new questionnaires and resources.
- Designed for You – A smooth, accessible experience created for people with lupus.
By using MyLupusJourney, you help shape a more inclusive and impactful future for lupus research—because your journey matters.
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